My Review of “Life Seemed Good, But …”


“Life Seemed Good, But ….” is an e-book collection (available from Smashwords.com) of short comic essays and fables written by my fellow Kenosha Writers Guild member, Richard Bell, and is unlike anything else you are likely to read.  Quirky and imaginative, Bell’s fractured fairy tales are funny and defy convention.  Many of the stories lead you to believe that there is some profound moral or lesson to be learned; however, more often than not, they instead lead to an absurdly underwhelming conclusion (“This is how the legend of Timmy the smelly, bald, and fat porcupine began” and the unforgettable moral, “Never interfere with dancing magical trolls who have matches” are two examples).

Bell’s humor is soft and surreal and intelligent, even when revealing the twisted stupidity of his characters.  If you read closely, you’ll find, buried in the nonsense, clever references to T.S. Eliot, Lewis Carroll, and, in one of my favorites, to “On the Waterfront” in a story about a tongue tied shoe named Terry that could have been a contender.

Bell writes with a stand up comic’s sense of timing, yet he refuses to be constrained by the typical setup-punch line structure of the traditional joke.   Rather, his humor is of the Monty Python – Steve Martin variety – he presents situations, images and asides that are just intrinsically funny, and make you laugh out loud without knowing why you are laughing.  For example, one of the stories, “Revenge”, begins this way:

In a long procession marched the villagers up the dark, remote mountainside. Some carried torches, some had pitchforks, and one had a 3/8″ socket torque wrench.

“Life Seemed Good, But …” evokes James Thurber, Robert Benchley, and Ogden Nash, yet at the same time is the voice of a distinct and unique comic mind.   A disturbed mind, maybe, but distinct and unique and funny none the less.

Reindeer Games


On a cold December morning in 1963, I and the rest of Mrs. Thiele’s morning kindergarten class took our places on what passed for a stage in the front of the classroom to perform our Christmas program.  Amongst the handful of parents in the audience, I spotted my Mom and my almost 21 month old little sister, Jenny.  Soon afterwards, Jenny spotted me, and was so surprised and thrilled at seeing her big brother that she broke free from my Mom, ran up to me, and gave me a big hug.   The festivities were just about to begin, and there was no way she was going to leave my side.  My Mom tried to gently cajole her back to her seat, but Mrs. Thiele, ancient and sweet, told her it was okay if Jenny wanted to join in the fun.

And so she did, sharing the stage with my classmates and me and even getting her own pair of paper antlers for the stirring reindeer scene, where we all held the antlers to our head and did our best reindeer impersonations, running and jumping about in our own un-choreographed interpretive dances.   As Jenny enthusiastically joined in, her hands holding her paper antlers to her head and a determined look  on her little face, I remember feeling a combination of embarrassment and pride, embarrassed by her disruption, and proud of not only her convincing portrait of a young reindeer but also of her devotion to her big brother.

The program continued, with Jenny participating in every part of it, until it was time for the moving conclusion, Mrs. Thiele’s reading to us some Christmas story from some big book.   Those of us in Mrs. Thiele’s class, veterans of the kindergarten experience that we were, understood that story time meant sitting silent and still.  Jenny, the 21 month old rookie, didn’t grasp this, and kept making noise and running about with her antlers, not ready for all the excitement of the morning to end.   She was disruptive enough that my Mom finally had to remove her, despite her loud cries of protest, which got louder and continued from the hallway long after they left the classroom.   As Mrs. Thiele tried to read above the slowly fading echoes of my sister’s crying, I could hear the snickering of some of the other kids, and I found myself feeling defensive and sad for my little sister.    I shot a disapproving look at a couple of the laughing kids, and was surprised when they suddenly stopped.

I think that this was the first time I realized that I, the youngest of three boys, was now an older brother.     It didn’t take me long to appreciate the awesome power that comes with the position.   I realized that not only would my little sister believe whatever I told her, but that I would decide which toys we played with, and that I would make up the rules to whatever games I decided we’d play.  

As I wielded this power over the years, a funny thing happened.  Although always reluctant to admit it, I found that I enjoyed my little sister’s company.   I found that she and I laughed at things that nobody else laughed at.   As time went on, it became clear that she is much more talented (born with an incredible artistic gift that completely missed me) and smarter than me, yet she still played the role of little sister, sharing in my interests and obsessions.  

Flash forward to the 21st century:   now in our middle ages, Jenny and I remain close.   We still laugh at things nobody else laughs at.  I still enjoy her company.  I am proud of the person she has turned out to be.  Caring and strong, she looked after my Dad in his last few years, and made sure that he had everything he needed.   I have difficulty imagining what his last years would have been like without her.

Despite the fact that she is a very formidable presence who can stand up for herself, I find that my big brother instincts remain intact, and I still feel the need to defend and look out for her.

Dave Saves the Economy


I make it a point not to discuss current events, especially those that are politically charged, on this site.  There are plenty of other places on the internet for that sort of thing, and I don’t want to offend any of my conservative or liberal friends.  But tonight I was struck with an idea that is so simple it is brilliant, and, for the good of our nation, I feel compelled to share.

One of the big debates going on has been on how to reduce the deficit.  Most of the debate has centered on spending cuts.  Meanwhile, liberals have argued that by increasing taxes on the wealthiest, we can provide a much-needed boost to revenues, while conservatives fear that such an increase will take money out of the economy that otherwise would be reinvested in it.  I have a solution that would increase revenues without raising anybody’s taxes.   The fact that, as far as I am aware, nobody else has come up with this idea, should finally erase any doubt that I truly am a genius. 

This isn’t the first time we have faced the need to raise revenues without raising taxes.  In the past, most states instituted lotteries as a fun and effective method of raising revenues.  There are now so many lotteries that I can’t keep them all straight in my head.   I’d suggest that anybody who questions their popularity go to the State Line CITGO Station and try to buy a gallon of milk.  Odds are you will find yourself in line behind at least half a dozen enthusiastic players, buying tickets or scratching cards or both or asking which of the six dozen games pays out tonight (I, personally, don’t play the games, but judging from the length of time I wait in line and observing the interaction between the players and the dispensers of tickets, it’s clear that nobody really understands how these things work).  The amount of money and the wads of twenty-dollar bills you see exchanging hands will surprise and impress you.

So, since the lottery is a very effective way of raising revenues, here is my solution to our economic crisis:

Stop paying the lottery “winners”, but don’t tell anyone. 

This will add millions to our revenues.   Why, just checking the Wisconsin lottery web site tonight, I see that the Powerball jackpot is $105 million, the MEGA millions is $30 million, and mega bucks is $10.9 million.  That is almost $150 million in Wisconsin alone!   Think of all the teachers we could pay with that!  Multiply that by 50 states and your head begins to spin. 

How this would work is simple – a computer program would make sure to pick winning numbers that don’t match any of the cards sold.  The “winning” numbers would be broadcast, and all the eager players would check their tickets, and, just like today, find no matches.   And, just like today, their disappointment would gradually fade as the desperation of being poor and out of work increases and they’d be back in line at the CITGO in no time, buying more tickets, and spoiling yet another gallon of 2% as both the milk and I age behind them.

The real beauty of this idea is in the odds.  If I am reading the web site correctly, the odds of winning the whole Power Ball jackpot is 1 in  195, 249,056 – that is one in 195 million, 249 thousand, and fifty-six.  No one could be surprised at not winning with those odds!   If they persist and ask who won, the official answer given could be “Some guy from upstate”, or “Somebody at a convenience store in Jackson”, as every state has at least one small town named Jackson, each with at least one convenience store.  To further lend credibility to the contests, the system could be set up so that occasional five and ten-dollar winners are allowed, but only to those players who have made a purchase more than $20 worth of tickets.

The simple beauty of this solution is that conservatives should be happy, since rich people don’t play the lottery, and the poor people who do play it are losing money anyway, and the liberals, well, they’re never happy anyways, so who cares.   And to those who cry that this is bigger government, we could consider privatizing the lottery by allowing corporations to run it.  However, this will get us right back to the current debate:  Who do we trust more, government or private corporations?  Or, to be more specific, which institution is more capable of being sufficiently corrupt and dishonest to pull off such a scheme?  

Even a genius like me is unable to answer that one.

Status Report – UPDATE


A couple of months ago (August 8th) I posted a report on the status of my memoirs project.  To jog your memory, earlier this year, I had a literary agent express interest in the query letter I had sent him and ask to see some sample chapters.  I sent him about five chapters, to which he responded very enthusiastically.  He then asked to see the entire book, and, unfortunately, decided to pass on the project.  I was disappointed but rebounded, and spent most of the summer trying to make the book better, getting rid of some fat, tweaking some parts and adding some new material.  Confident that I had a much better product, I went about searching for an agent anew. 

I created a list of six new agents and submitted my query letter.  The results so far are:  three no responses, two not interested, and one request, from an agent at one of the largest New York agencies, to see the entire book.  On September 13, I cleaned up a copy and nervously attached it to an e-mail.  For almost a month I opened up my in-box with a combination of anticipation and apprehension, looking for the response. 

Finally, last night, while at my cabin up north, I checked my e-mail from my Android and there, waiting in my in-box, was the long-awaited reply to my submission.  I stared at it for a couple of minutes.  The subject line gave no clue; it was merely a response to my submission.  I finally opened it and, as I suspected, it was another rejection notice.

It was very nicely phrased and complimentary, but, she apologized, she didn’t connect with the material as much as she had hoped she would.  She was nice enough to forward on some information about an organization of literary agents, where I might be able to find a better fit.

So you might think that I’m devastated, destroyed, de-incentivized, de-motivated, or some other harsh word that begins with “d”.   Although I am a little disappointed, for some reason I am taking it pretty much in stride.  Maybe it hasn’t hit yet, maybe I’m in denial (another “d” word).    But I am definitely not defeated – if anything, I am more determined (yet two more “d” words!)

One thing I don’t feel is any anger or bitterness to the agent.  I have read diatribes on line from many writers cursing out agents who rejected their work, portraying them as mean spirited and vindictive monsters who relish the opportunity to dash the writer’s dreams.   I have also read comments along the line that there is so much crap published they don’t know good work when they see it.   I don’t subscribe to either of these theories.  First, every time they open a submission, I am sure that the agent is hoping for success.  The agent makes his or her living based upon their ability to sell the work, not on how many would-be writers they can destroy.  As for the crap that populates the best seller lists, it may be crap, but hey, it sells – obviously somebody knew what they were doing.  

After I read the rejection notice last night, I went back to my laptop and for the first time in a few weeks I opened up the book, looking for things that could be fixed.   Instead I found myself getting lost in it.  I think enough time had elapsed that I was able to detach myself to some degree and I just read it, and to my surprise, I liked it! (Hey, Mikey!)  There are still a few imperfections and some parts that aren’t as good as others, but overall, I found myself smiling at the funny parts and getting choked up at some of the emotional parts.  I found the changes I had made worked.  About an hour and a half later, I was still reading, and I realized I hadn’t thought about the agent or the rejection for some time.   I found that I am still proud of my work.  This helped my mood considerably.

It could also be that I’ve been through enough other crap lately, from the death of my Father to my daughter beginning her senior year in High School to my  ongoing wrestling with Parkinson’s, that this is just something else to be dealt with, and not that big of a deal.

It also helps that I’ve got a strong support structure in place, starting with my wife, who, I suspect, for some reason I still can’t fathom, really loves me.  I also have a great family and friends who I can always count on.  Finally, I have my fellow Kenosha Writer’s Guild members and you, the few but loyal readers of this site, to give me encouragement and confidence.

Most importantly, I am not taking the rejection personally.  I still have an enormous respect for the agent who rejected me, but I am chalking it up to my work not being her cup of tea rather than any personal failure on my part.  My self confidence is no shakier than normal.

I’d also be remiss, with the Milwaukee Brewers only three wins away from the world series, if I didn’t throw in a baseball analogy:  I may have two strikes against me, but, like Ryan Braun fighting off an 0 and two count, I can stand in the batter’s box and foul off countless pitches before hitting a home run (ok, if not Ryan Braun and a homerun, would you believe Craig Counsell and a balk?).

So here I stand, more determined and defiant than disappointed and depressed (gotta love those “d”s!).   In the next few days, I will follow up with the three agents I haven’t heard from yet, and then I will start sending out to another batch of agents.  I’m going to give this agent thing another round or two before I consider self publishing.  I’m still eager to get my book out there, because I think it is good and may be of some value to somebody somewhere.   I’m more eager to put it behind me and get going on the next thing, whether it is re-immersing myself in my novel or starting something new.

Orbit


It’s six A.M. in mid October in my cabin in northwestern Wisconsin. The moon is full and bright and approaching the western horizon. Beyond the reach of its glow, stars shine bright and vivid. In less than a half hour, in the east, the sun will rise. Yesterday, shortly before it rose, it projected its rays onto the descending moon, and turned the moon a bright orange, almost a blood red, that the coyotes outside yipped and howled at.

She is light, lit by the same celestial spark that ignited the stars, and in the infinite darkness of the unending night and the numbing cold of oblivion, I cling to her.

Earnest Ernest


This morning, I reread “Big Two Hearted River”, a short story by Ernest Hemmingway.  It’s probably been thirty years since I last read the story, and it’s always been one of my favorites (note that it is number three on my “list-o-mania” list of favorite short stories).  But reading it now, with the passing of time and circumstances, the story resonates even stronger. 

On the surface, the story is the straight forward retelling of a man’s fishing and camping trip, a story that, as F. Scott Fitzgerald famously said, in which “nothing happened.”  But dig beneath that surface and you quickly realize there is much more going on.  The story is really about a damaged and traumatized man (Hemingway’s fictional alter ego Nick Adams) searching for something that has been lost.   

The story begins with Nick being dropped off of a train in a deserted and burned out town.  He has a pack containing his tent and provisions, and a leather rod case.   In the town, as described in that distinctive Hemmingway style, he stops by a bridge and looks down to the water below.  Note the cadence of the writing.

“Nick looked down into the pool from the bridge.  It was a hot day.  A kingfisher flew up the stream.  It was a long time since Nick had looked into a stream and seen trout.  They were very satisfactory.  As the shadow of the kingfisher moved up the stream, a big trout shot upstream in a long angle, only his shadow marking the angle, then lost his shadow as he came through the surface of the water, caught the sun, and then, as he went back into the stream under the surface, his shadow seemed to float down the stream with the current, unresisting, to his post under the bridge where he tightened facing up into the current.

Nick’s heart tightened as the trout moved.  He felt all the old feelings.”

Nick is one with the trout, as they both “tightened”, and he “felt all the old feelings”.  Like the trout, Nick has lost his shadow, his soul, the thing that marked his place in the world.   “Big Two Hearted River” is about Nick’s attempts to find his shadow, to reclaim his soul.  It’s interesting that Hemingway’s description of Nick’s sensory reactions to what he sees are described in very short and simple phrases (“It was a hot day”, “They were very satisfactory”, “He felt all the old feelings” )  I think this fulfills two purposes.  One, it gives the writing a lyrical rhythm, and two; it describes the mental and emotional state Nick is in.  Damaged as he is, he is able to process the complex and overwhelming rush of images and memories in only the simplest terms.  He longs to return to the simpler time of his youth, before the landscape was scarred and burned, before the incomprehensible complexity of the things he has seen and experienced in war.    As he goes on to his campsite, there are more simple descriptions of Nick’s moods and thoughts – “He was happy”, “but Nick felt happy”,  “He felt he had left everything behind”,  “It was all back of him” – but they somehow seem forced and untrue, and you are left with the sense that Nick is trying a bit too hard to convince himself he is happy and leaving everything behind.  

He goes on to pitch his tent and cook his meals, ritualistically and methodically and with great discipline.  He is determined to savor every moment and he does so, taking great satisfaction in the work of setting up camp, in the comfort of his tent, the taste of his food, and finally, the following morning, in the trout fishing he has come for.   All the while, though, the presence of the dark swamp that is just down river from him looms.

 “Ahead the river narrowed and went into a swamp.  The river became smooth and deep and the swamp looks solid with cedar trees, their trunks close together, their branches solid.  It would not be possible to walk through a swamp like that.  The branches grew so low.  You would have to keep almost level with the ground to move at all.  You could not crash through the branches.  That must be why the  animals that lived in swamps were built the way they were, Nick thought.

He wished he had brought something to read.  He felt like reading.  He did not feel like going into the swamp.  He looked down the river.  A big cedar slanted all the way across the stream.  Beyond that the river went into the swamp.

Nick did not want to go in there now …   

In the swamp the banks were bare, the big cedars came together overhead, the sun did not come through, except in patches; in the fast deep water, in the half light, the fishing would be tragic.  In the swamp the fishing was a tragic adventure.  Nick did not want it.   He did not want to go down the stream any further today.”

The river, where he camps and fishes, is filled with life and sustenance and purpose.  But then it flows into something dark and mysterious and foreboding.   As his trout fishing takes him gradually downstream, closer to the swamp, the apprehension grows.   It is the fear of death, and also the fear of both the known and the unknown.  He has seen terrible things that remain vivid and unresolved in the darkness of his heart and mind.  He sees the same darkness in the swamp and fears that not only are the terrible things in there, but so too is their ultimate resolution, and whatever unthinkable conclusions about the nature of the universe those resolutions would reveal. 

The story ends with Nick picking up his fishing gear:

“He climbed the bank and cut up into the woods, toward the high ground.  He was going back to camp.  He looked back.   The river just showed through the trees.  There were plenty of days coming when he could fish the swamp.”

He isn’t ready yet to confront the darkness.  He needs more time to heal the scars that time and fate have carved into his soul.

When I reread the story this morning, I found it even more moving and profound than I had when I read it as a much younger man.   I found parallels to my own circumstances, and some of the solitary trips I have made to my northern Wisconsin cabin in the past few years.  Like Nick Adams, I have found myself turning to nature and longing to “feel all the old feelings.” (with only varying degrees of success)   I also have my own personal swamp that I am afraid to face, that being the late stages of Parkinson’s disease that loom just down river from me.  Above all else, the themes of isolation and solitude, and the diminutive stature of the individual against his landscape, resonate with me.

Everybody has an opinion about Hemingway, from literary genius to male chauvinist hack to arrogant self important hypocrite.   Aside from the Nick Adams stories, I really haven’t read enough to subscribe to any of these views.  But I do know that, with “Big Two Hearted River”, he was capable of true artistry, painting a vivid and complex portrait of both a physical and psychological landscape. 

 

Froggy, Froggy, Pollywoggy


About 10:00 on a sunny Saturday morning in 1995, my wife went outside to do some yard work.  Our next door neighbor at the time, Sam Spitz, was out, and commented to my wife, “Boy, you guys were sure up early this  morning.”

 “What do you mean?”, Deb asked.

“Well, I saw Hannah and the dog outside at 5:30” 

This was a revelation to us, as we slept in until almost 9:00 that morning.  Unbeknownst to us, our daughter, about a year old, had gotten up, unlocked the door, and ventured outside, taking with her our dog, Sid.  When she got tired again, she came back in, bringing Sid in with her, and went back to bed, where we found her contentedly sleeping when we woke up.  How long she had been outside remains a mystery, as does how many other times previously she had woke up and decided to go outside.  Suffice to say additional security measures were put in place after that morning.

Hannah is our third and youngest child, preceded by her two brothers,   Jon and Nick.  When my wife was pregnant with her, and when the ultrasound images indicated we were going to have a girl, we heard from more than one expert that girls are easier to raise than boys.  For the first several months, this seemed to be true.  She was the sweetest and calmest baby you could ever ask for.  But then she learned to walk, and all Hell broke loose.  And talk.   And talk, talk, talk.

For the first five or six years of her life she was Hurricane Hannah.  Strong and independent and smart beyond her years, she wore us out.   Despite our attempts to act as “parents”, there was little doubt about who was really running things around our house.   For example, there was the time when Hannah was in pre-school, and fascinated by the aquarium in her class room.  My wife had prepared a quick and easy supper.  After calling several times for her to come to dinner, Hannah finally came to the table.  Quickly surveying the table and the main course of Van De Kamp’s fish sticks, she indignantly put her hands on her hips and confronted her Mother.

 “You killed it, you cooked it, and you expect me to eat it?”  The four year old was demanding an explanation.

 “I didn’t kill it”, my perplexed wife responded.

 “Well, you cooked it!”, she concluded as she left the table.  My wife and I were dumfounded.

 It was at this time that it became clear that the world we all lived in belonged to Hannah and was defined by her heart and her boundless imagination.  She’d let me join in her imagination from time to time.   Most mornings, I’d assume the role of the tireless servant who would serve her breakfast (“You’re oatmeal” I’d announce as I put it on the table in front of her, “is serrrrrrrved”).  When she was little, she wanted to be a schoolteacher, and as I’d walk past her room, she’d be reading to a classroom of her stuffed animals, holding a picture book high up so they could all see.  From time to time, I’d assume the role of principal, calling her into my office to give her some new curriculum.  Sometimes she’d call me in to her classroom to help discipline kids who were misbehaving.   I’d find myself lecturing invisible kids on the evils of throwing staplers at each other or bringing their pet giraffes into the classroom, at which point she’d sigh, “Dad, you’re getting too silly again.”

 I used to call her “Hannah Banana at the Copacabana” and even created my own lyrics to the Barry Manilow classic (!), “Copacabana”, which I used to sing to her all the time.

 Her name was Hannah / she liked bananas / she liked to sing and dance /and step on ants / at the copa,Copacabana./ Hannah Banana at the Copacabana

One day, as she sat on my lap watching television, I was flipping thru the channels when I came upon Barry Manilow himself sitting at a piano.  As if on cue, he started singing the real “Copacabana”, to which Hannah turned to me and said with amazement, “He’s singing the Hannah Banana song!”

The years passed and there was the endless parade of classic Hannah moments, like the time she was angry at her brother Nick and emptied a container of Chinese sweet and sour sauce under his pillow, or the time she drew in bright red crayon over the bathroom walls my wife had just minutes before finished a long weekend wallpapering, or the time up north when she fell into the river (“I forgot about that”), or the many times we’d be awakened by the crashing sound of her falling out of bed in the middle of the night, followed by the faint cry of her voice saying, “I’m all right”, or the time when we moved the couch in the living room to see, on the wall behind it, in tiny print that was her unmistakable hand writing the words, “Jon did it”.  Although she eventually grew out of her precocious youth into a sweet and smart girl, she has remained a vibrant and prodigious life force.  There has never been a dull moment when Hannah’s been around.

Today (September 27th) is her 17th birthday, and she has grown into a lovely young lady who is just starting her senior year.   She is smart and funny and surprisingly mature and level headed. I am very proud of her, and am going to miss her terribly when she goes to college next year.

One night, when she was about three years old, as I tucked her into bed, she said, “good night, froggy!”, to which I replied, “good night, froggy!”   Ever since then, she has been my froggy, and no amount of time and distance will ever change that.

 

 

The PD Kid Is Not Alone


I attended the 4th annual Parkinson’s Symposium, sponsored by Froedtert Hospital, today.  It was held in a Waukesha hotel’s conference center.   As I pulled into the parking lot, I wasn’t sure I was in the right location, until I saw the slow migration of men and women doing the PD shuffle from their parked cars to the hotel entrance.  I knew immediately that I was with “my people”, and it occurred to me, as I entered and waited in the long registration line, that it would be a mean but funny joke to yell “fire” in this crowd.  

I’ve been to a few of these now, and find the speakers to almost always be very interesting, and today’s symposium was no exception.   As interesting as it is to hear the scholarly presentations from dedicated professionals, I find the real value in these things is the opportunity to interact with other patients and learn about their experiences.  Today, at my table, I was, as is often the case, the youngest person (at almost 53 years of age, it may be the last demographic where I am considered a “kid”).  What was different about today’s table is that the two men who sat to my left had both had Deep Brain Stimulation (DBS) surgery.   This gave me a rare opportunity to trade notes with others who have been through this surreal process.  We all agreed that the pre-op process of clamping the metal frame to the head was possibly the worst part, and they were able to corroborate my experience of, as they screwed the spikes into my head that would hold the frame in place, being able to feel and hear the breaking of skull fragments.   Then there’s the part where they install the electrodes in your brain – while you are awake!   We traded memories of this, like old soldiers trading war stories, with one of the guys telling the scary story of how he almost died from the anesthesia administered to him afterwards, and that in the rush to save him (he was clinically dead for two minutes), they accidently dislodged the electrodes they had just put in, resulting in the surgery having to be re-done.  We traded notes on our neuro-transmitters and their operation and maintenance.  We discussed the differences between my one battery and their two battery systems like we were discussing the differences between six and eight cylinder car engines.

While we were out on break, I ran into a face that looked vaguely familiar.  Looking at his name tag, I recognized him as a nuclear engineer I used to work with at the Zion Nuclear Power Plant, more than 15 years ago.   I went up to him and we talked for a while, with him finally confessing that he didn’t remember me.  That was okay, as it has been a long time – we had a nice chat none the less.  He is about the same age as me, and it turns out he was diagnosed a couple of years before I was, and that he too has had the DBS surgery.  He is now teaching engineering at the Milwaukee School of Engineering.  Like me, his handwriting has become completely illegible, and like me, he is dealing with frequent and debilitating periods of daytime fatigue.  He is wrestling with how much longer he can keep working, just like I had been for the past couple of years before finally throwing in the towel in late March of this year.

We talked for a while in the hallway, until the program began again and it was time to return to our tables.  I said it was nice meeting him again and that I wish it were under different circumstances.  We both agreed that things aren’t as bad as they could be and that there are a lot of worse things we could be afflicted with. 

This is one of the things I’ve learned from attending these conferences.  We PD patients are, for the most part, a pretty resilient group.  When we talk, there isn’t a lot of whining or complaining about our fate – there is more the comparing of notes.   Recognizing, for example, that nearly every PD patient I’ve met has experienced to some degree the same issues with sleep disturbances and daytime fatigue, is somehow very reassuring for me.  I think it is because having Parkinson’s is such an intimate experience – the disease is much more than the impaired motor functions that result in tremors or the shuffling walk or the slurred speech – these are, to borrow a phrase from a Chicago symposium I attended last year, just the tip of the iceberg, the part that’s visible above the water’s surface.  Like an iceberg, about 70% of the Parkinson’s experience lies beneath the surface, and is known only to the patient.   This results in one of the worst symptoms of Parkinson’s – the feeling of isolation.   If for no other reason, the symposiums and conferences and support groups are worth attending for the simple knowledge that you are not alone.

So thanks to all the professionals who put together these events and donate so much of their time, talent and knowledge.   Thanks for your passion and commitment to our rag-tag community of the slow and unsteady.

Dystopia? Better than Dat Topia


(Recently, a friend asked me what movies or books I felt best described either our dystopian or utopian future.  Inspired by her question, I decided to write my own vision of dystopia.   Move over, Huxley and Orwell!  Beware, it is quite graphic and disturbing – read at your own risk!)

In the future, the world will be ruled by a single totalitarian government, and the production or consumption of mayonnaise will be outlawed.  All sandwiches will become dull and depressing, with the use of various types of Dijon mustards proving to be an inadequate substitute. 

This change will be brought about by the rise in power of a political faction within the conservative party known as the Sandwich Fundamentalists.   The Sandwich Fundamentalists believe in the purity of lunch times before the industrial revolution led to the mass production of mayonnaises.   They believe that God intended all lunches to consist of a cold meat and cheese on white or rye bread.  Extreme factions within the movement even call for the elimination of marble rye bread, decrying it as an “unholy mixing of the grains”, however, more moderate voices in the movement will take control and narrow its focus to the banishment of mayonnaise.  Successfully linking the warm and hazy nostalgia for a simpler and bygone age with the pristine lunches of the pre-Hellman’s era (their term for the post world war II years that saw a boom in the mass production of mayonnaises) and economic prosperity, the Sandwich Fundamentalists will begin as a small group lobbying congress on the evils of mayonnaise and grow, in the latter half of the 21st century, into a powerful political machine, backed by the mysterious and reclusive billionaire, Buddy Ebsen (not to be confused with  the star of the popular 70s television show, “Barnaby Jones”, with whom he coincidentally shares a name).   From his hidden Rocky Mountains retreat, Ebsen will quietly and efficiently guide and fund the Sandwich Fundamentalist movement, funding the creation of facilities and therapies to convert the unfortunate souls who have fallen victim to the hideous addiction of what they refer to as “the creamy white devil”.  These facilities will be known as “Mayo Clinics”, where trained professionals will administer the controversial “Cold Turkey” therapy, in which subjects admitting to mayonnaise addiction will be locked in a room and fed nothing but leftover Thanksgiving turkey sandwiches on plain white Wonder bread for a week. 

In the year 2075, at the conclusion of 20 years of worldwide war and famine that will result in Buddy Ebsen being named undisputed leader of the world, all production of mayonnaise will be halted, and the state controlled militia will confiscate all private holdings of mayonnaise.  (After lengthy debate in the Senate, it will be decided that Miracle Whip shall also be outlawed).    Ebsen’s reign of terror will continue for nearly 20 years, until the year 2094, when a mysterious stranger will arrive on the scene.

Leonard Hellman, heir to the Hellman’s mayonnaise fortune, will emerge from the secret underground bunker that his grandparents built in 2073, when it becomes apparent that Ebsen will reach power after the war.   Hellman’s grandparents and parents are both captured and executed in a televised event that signals the end of the progressive lunchtime movement.   Unbeknownst to the world, though, Stuart and Ethel Hellman had secretly conceived a son, Leonard, who was born in the family’s undetected underground bunker.   Through the years, Leonard remains hidden in the bunker, raised by his parent’s parakeet, Polly.   Through Polly, who Stuart and Ethel had painstakingly taught to speak several key phrases,  Leonard learns of his parents empire, and the dark secret that only they knew, the one secret that could bring about the downfall of Ebsen and the Sandwich Fundamentalists  and upend the world order.

On his 21st birthday, in June of 2094, Leonard Hellman and an aging Polly, the parakeet, emerge from his family’s secret underground bunker with a plan.  First, Hellman assumes the identity of Max Baer, strident Sandwich Fundamentalist, and gradually infiltrates the highest ranks of the organization, eventually earning the trust of Ebsen’s inner circle, and then Ebsen himself, who would come to think of Baer as his dim-witted but well intentioned   nephew.  Hellman, as Baer, and Polly establish residence in the Ebsen mansion, alongside other members of Ebsen’s inner circle, including Irene Ryan, who Ebsen refers to as “Granny”, and the lovely Donna Douglas.

One day, as Ebsen is out shooting up some food, Hellman and Polly find, hidden in a secret compartment at the bottom of an empty swimming pool, evidence of the dark secret Hellman’s parents had passed on to them.    In the secret compartment are literally thousands of jars of Hellman’s mayonnaise.  Polly captures the discovery on videotape, and the resulting footage, upon release to the public, brings about Ebsen’s downfall, with him finally revealing that yes, he is in fact the same Buddy Ebsen who was the star of television’s Barnaby Jones, and that, in the year 2095 he is 187 years old, and that his anti-aging secret is the steady application of Hellman’s mayonnaise, which he has used as a moisturizing cream for the past 150 years.  Ebsen unsuccessfully professes his innocence, saying the whole thing was actually a Quinn Martin production, and he is executed. 

Hellman is named leader of the world, and will reign over a period of enlightenment and restoration, where the good of Mayonnaise as not only a delicious sandwich topping but also as a revitalizing and life prolonging skin cream will bring about an age of peace and harmony of the likes the world has never known.

Snapshot


In the photograph, they are in black and white, and they are young and beautiful.    The three are standing in the snow, on what looks like maybe a frozen lake, bundled in their winter coats.  Their smiles convey warmth and love and happiness.  My Dad still has all his hair, and is still thin and muscular, and movie-star handsome.  My Mom, gently leaning on my Dad, is every bit his match, her skin still unwrinkled by time, and thin and mid-twenties young.   My Dad is holding my oldest brother, Mike.  Bundled in his winter coat and hat, he isn’t smiling but looks warm and natural and loved in his Father’s arms.  

They are unaware, standing there in the snow, that the three will eventually become six.  They know nothing about cancer or mental illness or congestive heart disease.   They have no perception of how fast nearly 60 years will pass.  They have no way of knowing that in that time, they will all be gone, and they know nothing of the other three they will leave behind.

They have no way of knowing that nearly 60 years later, on a warm Saturday in September, the photo will be posted on a bulletin board in the dining hall in a senior community in the town of Bruce, Wisconsin.   They can’t conceive the enormity of loss and the depths of emotion that the photo will inspire.

They are just a young family, standing in the snow near their home, having their picture taken.